Down Syndrome Symposium: Navigating the Early Years

Down Syndrome Symposium: Navigating the Early Years

By A Little Bit Extra

Join us for a deep dive into the world of Down Syndrome at our symposium - let's navigate the early years together!

Date and time

Location

AIA Vitality Hub

33 Man Kwong Street Central, HKI Hong Kong

Agenda

9:30 AM - 10:00 AM

Reception - 接待

Welcome and Opening Remarks 歡迎及開幕致辭 - Abigail Tannis Porter

10:10 AM - 10:50 AM

Panel 1 : Families - 小組 1 - 家庭


Meet families who provide personal insights on their journeys, the lessons they’ve learned and the vital role of community connections along the way. 家庭:認識那些分享個人經驗的家庭,他們的歷以及沿途社區聯繫的重要角色。 Moderator – C...

10:50 AM - 11:00 AM

Break - 休息

11:00 AM - 11:40 AM

Panel 2 : Medical - 小組 2 - 醫療


Medical professionals will explain the diagnosis process, congenital conditions, and available therapies for children with Down syndrome in Hong Kong. 醫護人員將說明香港唐氏症兒童的診斷過程、先天性疾病以及可用的治療方法. ...

11:40 AM - 12:20 PM

Panel 3 : Community - 小組 3 - 社區


Words of hope, encouragement and support from organisations in the community who strive to make children with Down Syndrome thrive in the early years. ...

12:20 PM - 12:25 PM

Closing Remarks - 結束語


Kay McArdle & Karen Li - Board Directors of A Little Bit Extra

Good to know

Highlights

  • 3 hours
  • ALL AGES
  • In person

About this event

Health • Medical

LOOKING UP: BRIGHTER FUTURES, TOGETHER

Down Syndrome Symposium 2025. Navigating the Early Years

展望未來:同行建設更光明的未來

2025年唐氏綜合症研討會,爲兒童前期發展導航


Join us for the first in a new series of symposiums exploring and celebrating the early-years journey of individuals with Down Syndrome and their families in Hong Kong SAR.

請參與我們一系列研討會,探索香港唐氏綜合症患者及其家屬在早期發展的旅程


The GAP: Hong Kong has a range of resources for the Down syndrome community, but these are not always easy to find.

差距:香港為唐氏綜合症社群提供了一系列資源,但這些資源並不總是容易找到。


The FIX: This symposium series seeks to build for a collaborative ecosystem. This inaugural 2025 symposium will address the early years; the second symposium will centre around ages 6-18 and the third symposium will encompass adulthood.

解決方案:本系列研討會旨在建立一個協作生態系統。2025年這個首次研討會將關注前期發展歲月;第二個研討會將圍繞5-18歲的年齡段,第三個研討會將涵蓋成年期。


The GOAL: Our aim is to consolidate resources, information and community access in a shared, online space, so individuals with Down syndrome and their families have a sense of purpose and belonging in their journey.

目標:我們的目標是在共享的互聯網中整合資源、信息和社區訪問權限,以便唐氏綜合症患者及其家庭在他們的旅程中感受到目的和歸屬感。


WHY ATTEND?

Be Inspired! : Connect with the Down Syndrome community, including families and the professionals who support them.

獲得啟發! : 與唐氏綜合症社群建立聯繫,包括家庭和支持他們的專業人士

Learn! : Understand Down Syndrome: What it is and what it means for the community.

一同學習!:了解唐氏綜合症,它是什麼以及對社群的意義

Gain Expert Insights! : Hear from medical and education experts who support the first few years from diagnosis.

聽取專家意見!:聽聽醫療和教育專業人士分享從診斷時刻到隨後幾年的見解。


ABOUT THE ORGANISER :

A Little Bit Extra is a Hong Kong charity (Licence: 91/18222) established in 2022. Our mission is to empower individuals with Down syndrome and the families that support them with resources in health, therapy, education, and career opportunities.

關於主辦單位:

A Little Bit Extra 是一家香港慈善機構(牌照號碼:91/18222),成立於 2022 年。我們的使命是透過健康、治療、教育和職業機會等資源,為唐氏症患者及其家庭提供支持


We are focusing our efforts on two key areas:

我們的工作重點包括兩個面向:


The Individual: We aim to support individuals with Down syndrome from diagnosis through adulthood. This includes providing essential resources through a comprehensive directory of doctors, private clinics, therapists, inclusive schools, and career opportunities.

個人:我們致力於為唐氏症患者提供支持,從確診到成年。這包括提供全面的醫生名錄、私人診所、治療師、整合學校和就業機會等必要資源


The Community: With over 3,000 individuals with Down syndrome in Hong Kong, including the 952 connected through the Hong Kong Down Syndrome Association (HKDSA), we are committed to extending support to the additional 2,000+ individuals. Our shared goal is to ensure all are connected, supported, and feel a sense of belonging

香港有超過3,000名唐氏症患者,其中包括透過香港唐氏症協會(HKDSA)聯繫的952名患者,我們致力於為另外2,000多名患者提供支援。我們的共同目標是確保每個人都能彼此聯繫、獲得支持,並感受到歸屬感。

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A Little Bit Extra

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Sep 27 · 9:30 AM GMT+8